Here we go again...

Yesterday, Tate had an EUA (eye exam under anesthesia) and we found out that his right (good) eye has changed a bit since last November. Long story short ~ he needs surgery to open his pupil and iris. He's not getting the correct amount of fluid to
the top chamber of his eye. He has a lot of scar tissue in both eyes which don't allow his pupils to dilate since they are scarred down to his iris. They plan to cut a whole in is pupil and snip his iris to let the fluid drain properly. This is not what I expected to hear.... at all. TBD and I were a little taken back.

All of this on top of what Reese must go through this summer. I haven't posted about it but Reese's prosthetic shell didn't work out at all. She had 2 weeks of constant pain. She shut down and quit eating.. all she wanted to do was sleep, curl up in a ball and cry - while being held at all times. We found out she had a corneal abrasion which is so painful. The shell just didn't fit and no matter how many times they tried to correct it to reshape, it just didn't work. We gave our sweet girl a break and decided to get a second opinion. We found another ocularist who works at Wilmer Eye Institute in Baltimore and also has an office in Bethesda. We went for a consultation on 6/2 and we just loved him. He was so knowledgeable and we just felt so at ease with him. He suggested that Reese undergo a procedure called a Gunderson Flap. We knew about that procedure and were hoping he would recommend it. Basically, it is a pillow placed over her cornea that desensitises it so she can wear the shell. She has a consultation with a surgeon next Wednesday. We were expecting one baby having eye surgery this summer but not two.

Please keep both Tate and Reese in your prayers.