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Friday, August 15, 2008

Frustrated!!

Our trip to Detroit was a bust! No zoo..no Rock and Roll Hall of Fame..no surgery...nothing!

We were so excited that Tate's care was now in Dr. Trese's hands only to be shut down. The appointment was Tuesday at 145p. This was our fifth trip to his office and at the most, we've waited 45 minutes. They have a great set up. You sign in and they administer the drops while you wait so when your name is called, you go straight in to see the doctor. This visit was quite a bit different...to say the least. We arrived at 140p and there was not a seat available to sit it. There were at least 50 people in this waiting room..parents along with their children all waiting to see Dr. Trese. I guess they got a little behind that day. There were at least seven blind children there and it was quite humbling for me.

We were finally seen at 430p and promptly found out that the letter from our doctor never made it to Tate's file..good thing I was prepared and had a copy myself. Dr. Trese comes in, reads the letter in front of us, looks at Tate for maybe 2 minutes (remember I said previously that Tate's eyes do not dilate so he couldn't see behind them very well), and tells us that he doesn't preform perifial iridectomys..only bilateral ones. What?? He said that we should go back to Tate's surgeon..you know, the one who sent us to Dr. Trese.. and have him preform the iridecomy and leave the lens alone. Even if Tate has a cataract or if the Dr gives him one, just leave the lens as is and then bring Tate back and Dr. Trese can remove the lens.

This could have all been found out with a simple call from our doctors to Dr. Trese. He could have given his second opinion over the phone instead of giving it to us during a 10 minute office visit. Which by the way cost us well over $600 in hotels, gas and not even counting food. We were very upset when we left there ( I did tell Dr. T that our doctor didn't want to do the surgery and wanted him to do it but it was kind of a mute point since he doesn't even do them).

The next day, we drove 12 hours home..our 8 hour drive always turns into 12 with stopping to feed our kids, and realized that now we were no longer upset but rather mad and frustrated.
We're now awaiting a call back from Tate's primary opthamologist who was rather quite surprised when I called and told him our ordeal. He's getting involved and having the surgeon fit Tate in for surgery ASAP. So, hopefully we'll know a little more next week.

Please keep little Tate in your prayers since he now has to wait even longer for this procedure....oh yeah, and pray for his frustrated mommy too!

3 comments:

Amy-littletoesandcheerios said...

Oh my. I'm sure even though you know how blessed you are it's still frustrating to feel like other children and families are healthy and don't have to go through all af this. Only God knows why. Maybe there's a reason the sugery didnt' happen.

The G's said...

All of that and still no Rock and Roll Hall of Fame? That is just wrong.

Giovanna said...

So sorry you had that ordeal! That absolutely sucks! But what can you do?
One day you'll like back and say, "Wow, I can't believe we went through all that!"
Sending prayers your way!